Tuesday, November 17, 2015

Charlotte's NICU Stay // July 30 - August 2

July 30, 2015
 
From my Instagram: Be anxious for nothing, but in everything by prayer and supplication, with thanksgiving, let your requests be made known to God; and the peace of God, which surpasses all understanding, will guard your hearts and minds through Christ Jesus. Phil. 4:6-7 NKJV // Charlotte is having an EEG done right now for the next hour. Please pray her brain activity is normal. Also please pray for me and Ethan as we are very anxious about these results. I'm clinging to God's Word as we wait. // Char had a good night, is off ALL blood pressure medicines, and is putting out more urine, which helps with her swelling. We should know the results of her EEG tonight or tomorrow morning.
 
From my instagram: 7-30-2015 Another overall good day in Charlotte's road to recovery. She's still a very sick little one with very specific needs coming up, but for Day 4 she's making the kind of progress that's good for the heart. Today's big prayer request was her EEG, which we should know the results of tomorrow. And today she actually lost a couple of her medicines! Like she's completely off her two blood pressure medicines, she no longer has a catheter, she had her nose temperature probe removed and she no longer has to wear the hat that was holding her continuous EEG probes in her head! She's been warm for over 24 hours now, so that's a small milestone for her too. Ethan and I have a positive outlook for her, but she's still got major hurdles to cross. While I've been talking a lot about her brain, her other major organs are still not functioning. Her urine output has increased, but her kidneys are not functioning as the filters of blood they should be. Her liver and digestive system are also still not functioning. I know tonight's update seems mostly negative and I don't mean it that way, it's just so easy to look at her and see her beautiful little face and her healthy pink color and think there's no way she's still sick. But right now Charbaby is still very sick and still needs an incredible amount of healing and prayer, which God has been faithful to give her! Please pray specifically for her EEG results to be good, her kidneys to start functioning, and her swelling to go down. Thanks again for all your prayers, support, love and encouragement! And all the praise, honor and glory to God for healing her as much as He has and will continue to do!
 
{Char getting her foot printed}



{First time seeing her with her eyes open!}

{Getting her EEG}

{EEG shows brain activity. They were looking for signs of seizures.}

 
July 31, 2015
 
From my IG - 7-31-2015 // Day 5 has started off with good news! Sweet girl has been weaned off her morphine drip, but will still get doses every 2 hours as needed, her chest tube is OUT since the hole in her lungs has healed and all the fluid that was built up around her lungs is gone, AND sweet girl is getting her 1st "taste" of breast milk via her feeding tube. The doctor doesn't anticipate her digesting it well, but it's just another test we have to give her and another step in her healing process. We're still waiting on the results of her EEG, so please keep praying for good results! Our favorite doctor is on today and it's always reassuring to hear his updates. Please continue to pray for him and the other doctors and nurses to have wisdom for her care. With God's grace and mercies, we'll continue seeing little Charlotte continue to heal.
 
From my IG - 7-31-2015 // Here's a glimpse of how great our God is! These pictures are only TWO days apart! All praise, honor and glory to God! Sweet girl is taking her healing slow and steady, and that's just fine with us. We have to listen to her little body and let her figure things out on her own with help from her wonderful medical team. When we came in this morning we were delighted to see her chest tube gone, no more morphine drip, and she'd been weaned off her nitric oxide which helped her absorb the oxygen in her lungs. Over the course of the day her urine output is up, and she had her 1st "meal"! Speaking of that first meal, the doctor expected her to not tolerate it at all and she actually digested part of it! She'll get her second 1/2 ounce soon in her feeding tube and it will be monitored until the next feeding. We're still waiting on the EEG results, but those take time and as my Mom told me, "the results of her EEG have no effect on the progress she's made today." Please do continue to pray for those results to be normal. More specific prayer requests are that her MRI on Sunday comes back with no structural damage to her brain, that her lungs continue to keep fluid off themselves and continue to heal, that her kidneys, liver, and digestive system start healing better and functioning as the major organs that they are, and that her swelling continues to decrease. She lost 200 grams this morning, so that was fantastic news and is very evident in her picture. I thank God every day for this sweet baby He's given me and Ethan. I feel so blessed to be her Momma and can't wait for the day I get to hold her, take her home, and truly call her mine.




 
August 1, 2015
 
From my IG - 8-1-2015 // We got the results of Charlotte's EEG! And I have to say, the Lord is GOOD! He has touched our sweet Charbaby and it's evident in her healing! Her test showed no seizure activity and no sharp wave activity, which are both good signs! Her brain activity was symmetrical which means no one side of her brain is more damaged than the other. Going into it, her doctor expected her to have severe encephalopathy (damage to the brain) and hers came back mild to moderate. Overall a good EEG! I'd say all the prayers for her are being answered, so even with all her positive updates please don't stop praying for Charlotte! She is still very sick with alot of healing left to do! I just want God to receive all the honor, glory and praise for what He's doing with her!
 
From my IG - 8-1-2015 // Now that I'm a parent, I have the smallest of ideas how much God really loves us. The smallest of ideas, but I feel it more real now. God loves us so much that He gave his only begotten Son to die on a cross so we could have eternal life. I, on the other hand, have my one, precious daughter, and I promise you there is not one soul on earth I'd sacrifice her life for. Let that sink in for a moment. God loves us so much that He sacrificed His Son for you to have eternal life. That's an incredible amount of love. John 3:16-17 - For God so loved the world, that he gave his only begotten Son, that whosoever believeth in him should not perish, but have everlasting life.  For God sent not his Son into the world to condemn the world; but that the world through him might be saved. // Charlotte's morning started off with the best news we could have received all day. The results of her EEG came back good. (One post back has more details.) The rest of the day was slow. The doctor is currently trying to wean her off one of her two ventilators to get her down to room level oxygen, and Charlotte is taking her slow, sweet time adjusting to all changes. Her progress is slow, with a step forward here then a step back there, but forward progress nonetheless. I pray we come back in the morning to see her O2 levels are near 21%. Sweet Girl is not getting her MRI done tomorrow as originally planned because she needs to be weaned off her Jet ventilator first. I believe this setback is for all of us to have more time to pray for her MRI to come back good. Overall I'd say Charlotte had a good, but slow and steady day of healing. To end the night, I ask specific prayer for her MRI (whenever she gets it) to come back good, good ultrasound results to come back tomorrow, her to be weaned off her Jet ventilator, and a good night's rest. As always, we appreciate the prayers and have seen God working miracles on our baby girl. She's not in the clear yet and still needs all the prayers she can get.





 
August 2, 2015
 
From my IG - 8-2-2015 // Not the morning update were used to having. God's blessed Charlotte so much in her little life already and we were starting to take the good news for granted. Charlotte's brain bleed has spread from a grade 2 to a grade 3. We're not sure if this is due to her brain not being as swollen as it was at birth and the bleed had room to spread or if it's always been a 3 and this is actually a more accurate scan. We did get some good news this morning and we praise God in that. She's continuing to lose weight and other small steps of progress. Please continue to pray hard for our little girl. She's got alot of healing left to do and big hurdles to jump with her brain bleed and development. // But when Jesus heard it, He answered him, saying, “Do not be afraid; only believe, and she will be made well.” - Luke 8:50


 
From my IG - 8-2-2015 // Happy One Week Birthday, my Little Love! You've gone through more in your one week of life than many others do their entire lives. You're definitely our little fighter, little love, miracle baby, and our most precious gift from God! We think you look like Daddy, but definitely act like Mommy. We're so proud of what all you've accomplished and overcome in 7 short days. Charbaby, we love you and can't wait to spend the rest of our lives watching you grow and continue to amaze us! ♡, your Mommy


 
From my IG - 8-2-2015 // What started off as a rough morning was ended as a good day. Despite the news that Charlotte's brain bleed has spread, we still have so much to thank God for. Sweet girl had her 1st {very small} messy diaper, continues to have good heavy wet diapers, and is still off all blood pressure medicines, morphine doses, and she's being weaned off her sedation medicine and Jet ventilator. She needs to be at 21% oxygen to be weaned off and she's currently at 25%. So close, yet it's up to Charlotte to tolerate it. Her feedings are getting better and her little digestive system is waking up and working hard! With the last feeding she had her tummy left almost no residual leftovers! And that's very good news! We've still got specific prayers as her journey to complete health isn't yet complete. We still need her to be weaned off her Jet ventilator so she can get her MRI. And it's general, but we just need her overall health to continue to improve. She's got sick lungs, kidneys, liver, and the digestive system. Also continue to keep her brain bleed in your prayers that it not spread more. // Funny story about my sassypants ~ Charlotte is awake more now and does not like her ventilator tubes and has been caught multiple times trying to pull her tubes out of her mouth. Seriously, my one week old is death-gripping her tubes with those long little fingers. So much that her nurses are having to get creative when it comes to preventing this. My favorite one was her baby hog tie using a baby robe. I literally laughed when I saw how she was rigged up. But it makes us feel better knowing she's not "playing" with her "toys"! She'll have plenty of time for toys when she's older! // Thanks to all that have continue to prayer for our miracle baby. We truly appreciate all the prayers and know that God is hearing them! // Jeremiah 17:14 Heal me, O Lord, and I shall be healed; save me, and I shall be saved: for thou art my praise.




 
Charlotte's NICU Story: Charlotte's Birth Story // Day 1 // July 27-29
Image Map

2 comments:

  1. What an incredible story, day by day. thank you for sharing! <3

    ReplyDelete
  2. What an amazing journey you have been on! Charlotte has been in good hands all along. God has really looked out for your family and it's so sweet to see her progress in the NICU :)

    ReplyDelete